Like, really love to travel.
We have a trip to San Diego coming up, bought and paid for BC (before cancer). We’re going. Part of it is work, but a bigger part is play. I’m supposed to keep going after that to Denver for a conference. I didn’t sign up to actually attend the conference, but I was hoping to catch up with friends. It was also bought and paid for BC, but if I have to cut that, I will.
Before San Diego, I was supposed to go to Minneapolis for work. I gave that one up and it’s being covered by another wonderful captioner, but that brings my potential lost days of work to four. Not an hour here or there, but full day jobs I’ve had to pass on due to uncertainty about treatment. I don’t want to leave anyone in a bind at the last minute.
I am hopeful that I will get into the clinical trial. I am going to get my blood drawn again. They have to check and make sure that I am actually BRCA1 mutated for themselves by submitting another blood test to their lab, I guess. I also have to get an EKG (electrocardiogram). I can’t remember if there’s other stuff I need to do since I’m sitting in an airport writing this as I head home from a weekend work trip to Boston.
Anyway, the trial appears to have good results in people with the BRCA1/2 mutations at higher stages, so I want to try it.
It’s a pill every day for 6 months. Visits to the doctor every 28 days, plus a few extra visits in the first months. No one will be allowed to handle the pills without gloves except me. I’m the only one who gets to physically touch the chosen poison. I’m just hoping it works and that I can avoid chemo administered by an infusion.
I just don’t like going to the doctor’s office. This weekend was interesting. I am a terrible liar, so when people asked how I was doing I proceeded to ruin their day a little by proclaiming, “I have breast cancer!” I am hopeful that I didn’t ruin anyone’s day too much and that they had fun at the conference. I had a fun time at the conference. I love my work because so many times it doesn’t feel like work, but people keep sending me money to do it, so added bonus!
As of now I’m not sure of the start date or even if I’ll be admitted. I’ll have to arrange the start date so that I can get to the doctor on day 15, hence why Denver may be a no-go. I won’t be drinking anything but water and non-alcoholic beverages while I’m on this pill. The worst side effect that didn’t happen in many people was to do with the liver. I’ll take no chances. And I’ll be eating a lot of iron and maybe taking an iron supplement if that’s allowed. The major side effect that hit the most people was anemia.
Talking about drinking reminded me that I forgot my Gatorade in the hotel fridge. Drats.